I am sharing some info recently received from StarFire, the Network Administrator at http://www.rhnegativeblood.ning.com/, who states:
“We are wonderful resource for rh negative people, and that is all because of our members. With so many people bringing their ideas, research and personal experience into the mix, it’s kind of hard not to be a good thing- especially where rh negatives are concerned. Because of our rare type, we often have to deal with things that the general population does not. Anti- D, or RhoGam as it is popularly termed is one of those things. Most of you know that women who are rh negative and pregnant are given this injection at various times during and or/after pregnancy. It’s a hot topic in our community, which brings me to why I am sending this message.
I wanted to share a new project with you. Recently I was approached by a member who is a graduate student, and she is interested in a finding out if there is a possible relationship between the anti-D injections that many rh negatives receive during pregnancy and children with neurological disorders. Her name is Penny, and she has two children that have neurological disorders and one child that doesn’t. Penny and I have put together a survey for women who have had children that asks some basic questions designed to show whether there is a correlation, or not. The more people that respond the better!
Penny is planning on writing her final paper on what she finds out in this survey. Usually a paper for a Masters Degree is read by people that could move to do some more research on a subject. WE NEED THE RESEARCH!
I know that this is a “hot” issue in our community so, if you have had children, please take a moment and take the survey- and then please take a moment and SHARE IT! Some people say that there is not a higher incidence of neurological disorders in our children and others say that it is a tremendous increase. Let’s see if we can find out, or at least pose the question in such a way that the medical community needs to look into it further. Women of any blood group are welcome to take the survey, we encourage any women who has given birth to answer the questions.
To take the survey, click HERE http://kwiksurveys.com/online-survey.php?surveyID=LMDMFH_db2b0794, and please pass it on!
This is really important and could be a huge boost for interest in doing necessary and LONG OVERDUE research on the issues of our community.”
As I’ve mentioned in other posts, http://www.rhnegativeblood.ning.com/ is an amazing site and I highly recommend it. Please check it out if you haven’t already done so!
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